Well, it certainly has been a long road. Now it seems like we will finally get what we’ve been waiting for. We are slowly going through the steps to admit Elyza into a program that will finally get her off her feeding tube. Paper work, lots and lots of paper work, plus raising money to help get her to NJ. A close friend of Patrice has setup an account with Wels Fargo bank, to help raise money for this treatment. The name of the account is “help Elyza eat.”. We are both excited and nervous, excited to get her off, nervous that something may go wrong.
Sunday, February 5, 2012
Well, we are doing well. We are excited, nervous, scared and all sorts of emotions. We met a family in our new ward that had a son on a feeding tube, and he got off. They shared the information to the place where they took their child. It is in Patterson, NJ. We are excited,we spoke to the place which is St. Josephs feeding and Swallowing center. It is a very pricy adventure, so, we are now trying to figure out ways to raise money to take Elyza there.