Despair

Well, the title of this post is a good discription of how we felt on Monday morning. No progress it seemed on getting the help from medicaid that we need for going to Patersen, NJ. So, we decided to go to the U Of U to find out if there is anything we can do up there to raise money. We spoke to ASUU and they reffered us to Carol who is over assigning booths. I admit, we were not very hopeful We had aready approched BYU with unsatisfactory results. We were ready to hear that unfortunately only school students were allowed to have a booth. so, it felt good when we were allowed to settup a booth. We are still taking donations, if you are able to, please click on the link below to donate. We aare not expecting have supporters put themselves out, five to ten dollars would be great!

final stretch

Hi, it has been quite an ordeal, but I hope that we are reaching our final fundraising steps. We are really close to heading East. For those who would like to see how Elyza’s thereapy is going, you are welcome to see the videos that we have posted on youtube. They follow the instructions given to us from NJ.

You may click here to see her videos.

 

Well, we hope you all enjoy them. Thanks to all of you who have been there supporting us.

One Little Life, Millions Touched

It has been quite a journey doing fundraisers for Elyza. We really appreciate the support we have received from everyone that has come forth with their donations and given words of encouragement and those who have volunteered their time to help out with the fundraisers. We enjoy being able to write entries that are not full of sad news of Elyza being in the hospital with one illness or another. Elyza is definitely a tough little girl that has touched many lives. She is not afraid to meet people or say hi. We can’t do much to hold her back, well dad doesn’t really try to hold her back from having her say hi to everyone. Mom on the other hand is always worried about her disturbing others. But, more often than not, people are happy to return her greeting.

YardSale

We worked hard today. I think we did ok on swells today. Patrice has a bad sunburn, but I think we will get through it. We are a little bit closer to raising the money for Elyza's treatment. We started setup at seven thirty in the morning, and finally took down by around six in the evening. Elyza stayed at grandma's house. We have setup online payments through paypal, If anyone wishes to donate, you may click on the button below.

Help Elyza Eat on the News

This passed week has been very exciting. We got Elyza in the news! We would like to share it with all of you ! You may click here to read the article! Donations can be taken to Wells fargo bank, account name "Help Elyza Eat" account was created in Utah and it is set to confidential. Online donations may be done by clicking on the button below as well. the system can process donations under ten if you are unable to donate bigger amounts, every little bit helps!

A Walk to Remember

Well, it certainly has been a long road. Now it seems like we will finally get what we’ve been waiting for. We are slowly going through the steps to admit Elyza into a program that will finally get her off her feeding tube. Paper work, lots and lots of paper work, plus raising money to help get her to NJ. A close friend of Patrice has setup an account with Wels Fargo bank, to help raise money for this treatment. The name of the account is “help Elyza eat.”. We are both excited and nervous, excited to get her off, nervous that something may go wrong.

New Adventure on the Horizon

Well, we are doing well. We are excited, nervous, scared and all sorts of emotions. We met a family in our new ward that had a son on a feeding tube, and he got off. They shared the information to the place where they took their child. It is in Patterson, NJ. We are excited,we spoke to the place which is St. Josephs feeding and Swallowing center. It is a very pricy adventure, so, we are now trying to figure out ways to raise money to take Elyza there.

Doing Great

Elyza has been doing great. She is nibbling here and there. We are still trying to keep our hope that she will some day eat normally.

 

strong emotions

elyza is doing good she is getting big and in to everything and helping where it is not need at that time.
elyza might have to have surgery on here head to make it grow elyza's head plats are fused together and the only way to help elyza is to go in and brake them a part so she can have more room to grow.
with out this surgery elyza could go back in what she is doing like not waking running or even talking.
dad and mom have tried to do many alternatives things to maybe help elyza so she dose not have to go through with this surgery but know it has come to the little stretch and it dose not look like we can stop what is going to happen to elyza if we do not do the surgery elyza could stop doing what she is doing but if we do the surgery elyza will have to be in the hospital for some time and we do not know what to do.
we all fell sad for this little girl that is here on this earth and all that she has had been throw in here short little life.
but throw it all elyza is sill happy and is a very beautiful little girl and she has no one that she blames for what is happening to here she may get made form the pan and she may get upset form time to time but elyza is a rock when it comes down to it.
allwas looking for some one she can help and give loves to elyza may be small but she dose not have a small hart here love is bigger then what she is.
we are praying for this to come out will.

elyza love

Elyza is a very special little girl to mom and dad.
Elyza has been threw so many things threw her little life but that does not stop her from doing what she wants.
Elyza is now up to my hip in her height and her weight is about 29 lb Elyza is getting in to everything these days. She has put a new roll of tp in the toilette many times, She loves to see it come unraveled while it goes down the toilette after she has flushed the toilette, i do not get it.
we still have to help her every day on making sure she does not get sick and land in the hospital. Some days are very hard for all of us, it may look very nice out but, there may be a slight wind and that will make it so we can not go out. Other times it will be good we go out and then it starts to rain.
Elyza does not like it when we have to put a blanket over her when we are out.
Elyza loves to see where she is going and it is very hard for her to understand that we are doing this to help her to not get sick again.
Elyza loves to help mom and dad, when ever we cough sneeze or even say ouchy that hurt me, she will run to your side to see what she can do to help;
even if she is in the other room and if we do not reply to her asking us are you ok she will stay with us until we say we are ok and if we do not say that we are ok and mom or dad is not there she will get us and take us to mom or dad to help them.
I guess she gets that from us.
I hope that Elyza will always be that loving towards every one, like she is now.
I am so proud of her and how far she has gone in the last 2 years.
I hope that Elyza will get all the opportunities to do what ever she wants in life, in reason.